Category Archives: Asphyxia’s Life

How to put up local food for winter

 

 

 

 

 

 

One of the best ways we can reduce our resource footprint is to cut down on food miles. By learning how to preserve local food ready to eat in winter, we can end up with a pantry full of cheap food that is tasty beyond anything you can buy in the supermarket. You also avoid producing heaps of waste, another plus for our planet.

It’s actually not that hard nor time consuming. I can fill these shelves with a few hours a month from November to February, and then in March I spend a few days on the tomatoes. The hardest bit is doing it for the first time – collecting your jars and preserving equipment, and figuring out where and when to get the best local surplus food.

Although it may seem strange to think about winter when the weather is just warming up, now is the time to get organised to make sure you can eat local food all next year. Start with cherries and apricots in November and December, and finish with tomatoes in March or olives in June.

I’ve written about how to do this in more detail here.

Don’t forget to help improve access to the arts!

If you haven’t already had your say and told the government how they can improve access to the arts for people who are Deaf/deaf, have a disability or mental health condition, now’s the time! Seriously, please don’t delay. This is SO important. We all have the opportunity to make a huge difference to the lives of so many Australians – let’s do it.

If you’ve only got five minutes, email Arts.Disability@arts.gov.au and say:

– Access needs to be built into all creative projects from the start, and this includes creation, promotion and presentation of arts projects. The government should fund this.

– Provide open captions for all public screenings of movies and laws to support this.

– Create an awareness campaign to remove the stigma, lack of respect, and discrimination experienced by people who are Deaf/deaf or have a disability or mental health condition.

If you’ve got more time, head to my blog post for more details:

 Here’s our chance to improve access to the arts!

Here’s our chance to improve access to the arts!

The government is working to improve access to the arts for those of us who are Deaf/deaf, have a disability, or a mental health condition. People, this is super-important! It’s an amazing opportunity for us to make a difference!

The government is not sure how to provide access, and they need us to tell them. They want to know everything about all the barriers and discrimination we experience in accessing the arts. The arts includes movies, books, theatre, multi-media games, fashion design and everything creative. You can fill in a survey or send them an email. You don’t have to be Deaf/deaf, have a disability or mental health condition yourself – the government also wants to hear from you if you are our friends or family members, or work with us, or want to work with us in the future.

As well as filling out the survey, I am sending an email which I have pasted below. I have outlined three things the government can do that I believe will make the biggest difference. If you feel these things will help us, please contact the government and let them know, or tell them what YOU think will help. The more voices they have, the more likely they will make the change, and the right change. Scroll to the bottom to find out how to contact the government.

Please pretty please, help let everyone know about this amazing opportunity by sharing this post!!

Dear Cultural Ministers,

Thank you for working to make the arts more accessible for those of us who are Deaf/deaf, have a disability or mental health condition. I am a professional Deaf artist who has been working in the field for 18 years. In this time I have experienced a significant amount of discrimination, and I have had to fight hard to become professional and overcome numerous frustrating barriers.

THE TYPE OF BARRIERS I HAVE FACED

Let me tell you about just some of the barriers I have experienced:

  • As a young performing artist, I could not find a professional company that would take me on as they would also have to hire interpreters and this was prohibitively expensive.
  • I decided to freelance and tried to get an agent. But no agent had confidence in me and I received no bookings.
  • I invested my personal savings to pay a friend to call festivals and events and tell them about me. I posted them my promotional material and started to receive bookings. Once they had booked me once, repeat bookings were easy as they loved my work.
  • I became a writer, had a book series published, and was invited to speak at writers’ festivals. However, I had never done this type of speaking before and I wanted to go and watch some other authors speak, so I could get an idea of what types of things they said. I could not access any author talks as there were no interpreters. So I had to make up my talk ‘blind’, without knowing the context. To this day I do not know how my talk sits in the context of others’ talks. I only know that I get repeat bookings.
  • I went to a writers’ festival and was invited to opening night networking and drinks. However, while the festival had hired an interpreter to interpret my presentation, there was no interpreter for the networking and drinks. I could not connect with others on the scene. I remain isolated as a writer.
  • At one festival, a writer who I am absolutely in awe of was presenting. I begged the festival to provide interpreters for her talk. I was told they would not, because the previous year they had a budget for interpreting but no Deaf people came, so they scrapped that budget and it’s not available this year. I thought to myself: maybe the Deaf people who didn’t come are like me – I don’t even look at programmes for writers’ festivals because it’s like looking at a candy bar full of lollies I am not allowed to eat. How would I know to look at that one festival’s programme?
  • I became a visual artist. I applied for a course in how to best sell art online. I emailed the teacher and asked if the course content was accessible. He said it was not. I asked if he could make it accessible. He said no. I asked if he would teach me privately. He said, ‘This course is not suitable for you.’ I sent him a long and persuasive list of my credits and experience and outlined exactly how I thought he could help me. He relented and gave my private sessions via type-Skype. He told me later I was among his best students.
  • I applied for another course and they said it was not suitable for me. I was ill at the time and felt too tired to fight. I gave up on that one. I often give up. I have to pick my battles.
  • I wanted to go to a film festival, but when I looked at the programme it didn’t say which sessions had captions. I called up and asked. I could book for a session with three movies, one of which had subtitles but the other didn’t. That would hardly be a fulfilling experience, so I didn’t go.
  • I wanted to go and see some shows at the Melbourne Fringe. But in past years the programme did not indicate which shows would be accessible to me and there was no central office I could call that would know which shows were suitable – I’d have to call up each show individually. I did not even get the programme nor look through it. Best to focus on things I CAN access.
  • My family and friends love to go to the movies. So do I. But I cannot go with them because they like to see new popular movies, and I can only watch foreign films as they have subtitles. So they go and watch the movies and talk about them and I am left out. Then a few months later I watch it by myself on DVD. I want to talk about it with them but they have moved on or forgotten – they are talking about this week’s movie.
  • NDIS, since it was rolled out, now provides me with some funding that I could use to book interpreters for events and pay for course content to be transcribed. This has been amazing and life-changing for me. However, my current plan gives enough funding for one booking (max 2 hours) per week. I have to choose between using this for a medical appointment, a social event, a cultural event, a fitness or creative class, or access to something I want to learn online. For the other 166 hours each week I am still without access.

Please help make this easier for artists who come after me, and for the rest of my career as an artist and my life as a consumer/creator of the arts. In this email, I outline the key things the government can do to make a huge difference to accessibility in the arts.

BUILD ACCESS INTO CREATIVE PROJECTS FROM THE START

Access needs to be built into all artistic projects from conception. Just as funding bodies require artists to present a budget and a marketing plan, so should artists be required to develop an access plan in order to secure funding. This access plan must be funded by the government, so as not to inhibit artists’ capacity to create. For example, arts courses, shows, movies, exhibitions etc should all be required to include captions, transcripts and visual information. Artists should be encouraged to think creatively about how to meet access requirements in an integrative and innovative way, rather than seeing access as something to lump on at the end of a project. Creators should ask the question: how will people who are deaf or have a disability or mental health condition access this? A guidebook needs to be made in consultation with Deaf/deaf consumers, those with all types of disabilities, and those with mental health conditions, that help artists and organisations understand how to provide access. Funding organisations need to fund this as a crucial part of the project.

Access needs to be incorporated at the promotional stage too, so that programmes routinely indicate the type of access provided/available to audiences. Booking systems need to be made accessible. For Deaf people, sometimes the barrier is small, such as that we are required by the computer system to enter a phone number but there is no box to check to indicate that that number is for text messages only, and sometimes the barrier is larger in that we are expected to make phone calls (cumbersome through the National Relay Service) or are required to book through a special organisation rather than through mainstream channels. People with other disabilities, such as those who are blind, face different barriers to booking. The guidebook needs to cover all aspects of creation, promotion and presentation of arts projects.

WE NEED ACCESS TO MOVIES

Movies are an intrinsic part of life for most Australians. Going to the movies is seen as a way to switch off at the end of a week, a way to ignite romance on a date, a way to get together socially with friends, and to celebrate the conclusion of a project or course of study. Discussion of new and popular movies is part of life. Deaf people are left out of this because most movies do not have open captions. There are so many barriers to the current Captiview system of providing access that it is useless. To provide true access, we need open captions to be displayed on all movies. Legisltation needs to force this to happen, as cinemas are afraid that they will lose audiences if they do this under their own initiative. Legislation needs to require that movies can only be imported into Australia if open captions files are provided too. Australian made movies must be required to develop captions during the production stage, as part of the funding requirements. Australians will quickly become accustomed to watching movies with captions. In European countries where the main language is not English, almost all movies are shown with captions, and they still experience a strong audience in cinemas. Perhaps cinemas could offer special screenings for those who oppose the use of captions in less popular timeslots (think Tuesday mornings ‪at 9am‬ – which is currently when we generally get to access the movies if access is provided at all).

I have focused here on Deaf access, as that is my area, but naturally access needs to be provided on all levels, audio descriptions included.

ATTITUDES NEED TO CHANGE

Peoples’ attitudes are a major obstacle. Art/creative teachers don’t want to go the extra mile to make their courses accessible to me. Agents are reluctant to take me on. Festivals are reluctant to book me. Professionals are nervous about giving me commissions and residencies. They don’t think it will be worthwhile, because they have never seen Deaf artists, performers and so on. This is a systemic problem, which creates barriers in the arts as well as in all aspects of society. In order to improve access to the arts, we need to change peoples’ attitudes. There are few Deaf people in positions of power and authority because licensing boards don’t accept us. It is a huge fight to become a teacher, a nurse, a doctor, a pharmacist and so on. Some people win, and many lose or give up. With few of us in role-modelling positions, the public doesn’t see us. They assume we are not in those positions because we lack the capacity to perform them effectively. This feeds into an assumption by the mainstream that we are stupid and incapable.

The government can address this firstly by placing new, stringent legislation in place that force organisations and licensing boards to stop discriminating. They can set up an organisation that we can contact when we experience discrimination, who will fight on our behalf to rectify this. Currently the legal system is inaccessible and ridiculously expensive. Fighting discrimination is impossible for most of us. The government should be doing this.

The government also needs to put in place initiatives to get Deaf people, people with a disability and people with a mental health condition into the top tiers of jobs in all professions, so that we can become role models and be seen in the public. When the public sees us in professional roles of authority, the stigma and fear surrounding us will be vastly diminished. They will come to respect us. This can mean extra support for education to help us achieve the knowledge and skills we need, as well as whatever support we need to fulfil the role given our limitations, and financial incentives for employers to take the risk in hiring us.

The government can create an awareness campaign, much like those we have had for drink driving and sun protection, to help people understand how to relate to us in an inclusive, respectful way. In Australia, even though many of us are not religious, we have a strong cultural understanding of the Ten Commandments as a kind of moral code that we are not to break. In Scandinavian countries, there is a similar cultural understanding known as Jante’s Law.

The laws are:

  • You’re not to think you are anything special.
  • You’re not to think you are as good as we are.
  • You’re not to think you are smarter than we are.
  • You’re not to imagine yourself better than we are.
  • You’re not to think you know more than we do.
  • You’re not to think you are more important than we are.
  • You’re not to think you are good at anything.
  • You’re not to laugh at us.
  • You’re not to think anyone cares about you.
  • You’re not to think you can teach us anything.

When I go to these countries, I am treated with respect and not discriminated against to the extent that I am here in Australia. I believe it has to do with the cultural foundation that was built on these laws. People who believe in Jante’s Law cannot look at a person who is Deaf or has a disability and assume they know more than us, are smarter than us, nor are better than us at anything. Instead, people relate to me as though I am more skilled and knowledgeable than them, just as they do with everyone in their culture. I mention this because cultural understanding and awareness is critical to how we are related to and treated. I don’t believe Australia should adopt Jante’s Law. But I do believe that a strong awareness campaign that promotes respect for the skills, knowledge and insight that people who are Deaf or have a disability can bring to our community would make a huge difference.

Much of the stigma I face from individuals and organisations that deny me acess is due to a lack of awareness, fear and uncertainty. By providing an awareness campaign about what it means to be Deaf/deaf and how people should relate to us and include us would be very helpful. Obviously this is needed for those with other disabilities and mental health conditions too.

WHY I NEED ACCESS TO THE ARTS

The art is the most important part of my life. It brings me great pleasure and keeps me sane, as well as earning me an income. I am a voracious reader and always have a book on the go, and have written numerous books myself. How I wish I could access networks of authors. All types of craft – knitting, sewing, art journaling, drawing, painting, mosaicing, sculpting and jewellery making (to name just a few) are activities I do for fun. Spending time making things with my hand brings me peace and calmness in a way that nothing else can. Learning the skills to do these are crucial to my enjoyment, as is accessing and becoming inspired by creations made by others. Dancing and circus skills keep me fit and healthy and again I love to participate in classes for these. When I go more than a week without being creative, I feel depressed and life does not feel worth living. I know that I need to be proactive in staying creative, for my mental health.

Many thanks for considering us and being prepared to make a change. I am happy to be contacted to help make a difference in terms of designing suitable campaigns and law changes and an access handbook for artists.

Many thanks for considering us and being prepared to make a change.

Yours faithfully,

asphyxia-signature.png

Asphyxia

 

WHAT YOU CAN DO

  • Fill in the government survey:
    People who are Deaf/deaf, have a disability or mental health condition click here.
  • Carers, family and friends of the above group click here.
  • Organisations who work with or want to work with the above group click here.

Email Arts.Disability@arts.gov.au and say:

• Access needs to be built into all creative projects from the start, and this includes creation, promotion and presentation of arts projects. The government should fund this.

• Provide open captions for all public screenings of movies and laws to support this.

• Create an awareness campaign to remove the stigma, lack of respect, and discrimination experienced by people who are Deaf/deaf or have a disability or mental health condition.
If possible, give examples from your own experience to support these three ideas. Tell stories about what happened when you tried to access something and couldn’t, and how you felt about it, and how it affected those around you. Let them know why it is so important for us to access the arts. Share your email online to encourage others to have their say too.

You can also make your submission public or upload a video of yourself signing in Auslan – see here for how to do that.

For more info from the government, read here.

Please encourage those around you to have their say as well – share this post to let everyone know about this amazing opportunity to MAKE A DIFFERENCE!!!

Ever thought of raising your own meat on a city block?

I was vegetarian for 20 years. I’ve never had anything against people eating meat, though I’ve always thought it would be most ethical to raise the animals yourself, and probably kill them too. When I started to eat meat again for health reasons, I decided to put my money where my mouth is, and raise and kill my own meat. I felt that way I would truly understand and appreciate the animal I was eating.

There are other reasons why I believe it’s good to raise our own meat. The meat industry can be pretty cruel. I only eat meat from local farms where I’m pretty satisfied that they raise their animals well and kill them humanely. But even so, surely I could give them a better life in a suburban backyard than when they are raised on a commercial scale. After all, our home-produced eggs were so much better than the most expensive organic free range eggs we could buy. Like the eggs, I expected the meat to be more nutritious. Also I am concerned about the amount of wastage that occurs commercially. Despite repeated requests, I’ve never been able to obtain chicken heads or feet for soup. What happens to them all? Are they chucked out? We are in the habit of eating the muscle meat but not the organs (though they are very good for us), and in our society it’s rare to make stock from bones these days. By processing my own meat I could ensure minimal waste.

I also want to really understand how much food I could produce in my backyard. I already produced 80% of my family’s fruit and vegies. Could I produce a good portion of our meat onsite too? I wanted to find out.

I’ve blogged about my journey raising chickens for the first time.

https://helloasphyxia.wordpress.com/blog/living-sustainably/raising-chickens-for-meat/

Nightmare

It has been almost two years since I moved out of the house I built myself. In one fell swoop, I lost my health, my home, my partner, my son, most of my larger extended family, most of my friends, and my financial security. My life has had a nightmarish quality to it, as I have struggled to adjust. I kept thinking I would wake up and find myself in the familiarity of my old life, to Jesse slipping into my bed for a morning cuddle. I have been homesick for not just my home, but my life.

I am adjusting now. In many ways my new life is better. Except for the thing that matters the very most: my beloved son is not with me. In that way the nightmare continues, day after day after day.

Life Without Toxic Relationships

One advantage to having my entire life wiped out and being forced to start over in almost every single aspect, is that I can rebuild it much, much more carefully. The thing I am doing differently this time is choosing the people who will be in it according to whether or not they have empathy, and whether or not they are manipulative. This article, How to never get involved with an abuser again, changed my life. It says to look at the way a person acts, not what they say, and don’t accept any excuses for hurtful behaviour.

When I read the list of signs that a person lacks empathy, I recognise people I have known. Here are some examples:

• Inability to imagine how their words and actions may affect you;

• Isn’t interested in finding ways to soothe your worries;

• Becomes angry or looks at you with a blank face when you cry or get emotional;

• Is hurtfully blunt and casually critical, and when you become upset, tells you they are ‘just being honest’. Honesty without kindness is cruelty.

• Talks at length about a topic that clearly bores you, without noticing;

• Brings up sensitive topics after you’ve asked them to stop;

• Expects instant forgiveness;

• Invalidates your thoughts, experiences, ideas and concerns;

• Neglecting or ignoring you when you are sick;

• Judgemental;

• Believes they are always right;

• Expects you to accomodate their needs and schedule, without regard for yours;

• Doesn’t ask you how your day was or how your doctor’s appointment went;

• Self-centredness – seems to have plenty of empathy for you but not for others. Watch out – you’re next;

• Indifference to the suffering of others;

• Doesn’t seem to care how their words or actions affect you.

I will add some red flags to watch for of my own:

• Has a vision of how you are or should be, and is more interested in trying to get you to fit that vision than understand how you actually are;

• Offers you something and when you take them up on it, acts like they never offered it;

• Expects you to move out of their way rather than expecting to work around you;

• ‘Forgets’ saying or doing things that upset you when you call them on their behaviour, and tells you it didn’t happen;

• Tells you that you’re over-reacting or being too sensitive when let them know you feel upset or hurt;

According to the article, you can tell if you are being manipulated by looking at your own feelings about the relationship: You often feel guilty; your mood depends on the state of the relationship; you feel inadequate; you never feel sure where you stand; you carefully control your words, actions and emotions around this person; you do things that go against your values or make you feel uncomfortable; expressing negative thoughts and emotions seem forbidden so you hide them; the relationship feels complex and you can’t quite put your finger on what the problem is; you try to figure things out but can’t get anywhere; you want to please this person but keep getting it wrong; you end up in no win situations where you’re damned if you do and damned if you don’t; you feel afraid of losing the relationship; you feel you are walking on eggshells.

I watch for the above in the new people I spend time with, and if signs of manipulation or lack of empathy come up a few times, even in small ways, I choose not to continue the relationship. I am astonished to see that these traits can show up in the earliest encounters, often in seemingly positive ways. There was a guy who invited me on a date, telling me we’d go for a walk on the beach and that he had a puppy I was going to fall in love with. He did not ask to find out if I like walking on the beach, and he didn’t check whether I am into puppies. He assumed. Red flag: he has a vision of how I am supposed to be, not interested in finding out who I actually am. I stayed with a woman who blindsided me with upsetting text messages during an important meeting. When I looked back I recalled a myriad of other small red flags. I decided to move out before things could escalate. A friend showed me a series of videos on YouTube, and even after I had pointed out that I couldn’t understand them as they didn’t have subtitles, continued to insist that I would find them fantastic. She didn’t notice the bored expression on my face.

I’ve found I can tell a lot about a person by working with them in the kitchen. Say I’m washing the dishes, and the other person wants to wash their hands, what happens? Some people wait until a suitable moment for me, and then reach in quickly to wash. Others expect me to stand aside, or even stop washing the dishes altogether, because it is inconvenient for them that I am in the way. The former have empathy – they are thinking about my experience and taking care not to interrupt it. The latter are focused on their own experience and unconcerned with mine. I keep a very sharp eye on the people in the second group – usually there are other red flags which surface. By watching the small ways people interact with each other, I’ve found I can quickly pick up who has empathy and who lacks it.

Of course, some people are a mix – empathic in some ways and manipulative in others. I have noticed that if I call them on their manipulative behaviour or for crossing my boundaries, they will either respond with concern that they have upset me and a desire to understand better (and to change), or else respond defensively and maybe by pretending that the thing never happened. The people in the latter group get struck off my list. With the former, I watch carefully to see if their intention to change translates to actual change. Do they stop crossing my boundaries in the way I requested? Remember that behaviour speaks louder than words.

By pulling the brakes on these relationships before I become too invested, I have noticed a magnificent effect on my life: it is now filled with deeply empathic, caring people. I have never been so well loved as I am now.

Waking up to another day without you

The indescribable weariness
of opening my eyes to another day
and realising that nothing has changed,
that my boy is still not with me,
that all the strength I needed to get through yesterday
must be called upon again today,
and tomorrow,
and the day after,
and on and on probably into infinity.
And I just want to close my eyes again
and not know about it.