Natural treatment for ankylosing spondylitis and inflammatory arthritis

When I was diagnosed with Ankylosing Spondylitis (AS), and told by doctors it is an auto-immune disease, a form of inflammatory arthritis, for which the cause is unknown, and treatment consists of ‘heavy drugs’, I was devastated.  Google searches didn’t yield up more information, and it took me a long time to uncover effective, natural ways of treating the disease. In the process, I also discovered that the causes are in fact known to some researchers. This article covers the best of what I know about AS and how to manage it.

(By the way, please read all the way to the end before you leave a comment.)

Natural Treatment with Vinegar

After my first post on my old blog about AS, one of my readers, John, left a comment telling me that drinking apple cider vinegar removed all his symptoms of AS. This has been life-changing for me. Vinegar is the best treatment I have found, and after a year on vinegar, I still feel great.

It seems vinegar was suggested by Margaret Hills, back in the 1950s, in her book about inflammatory arthritis. From her nursing training, she understood that inflammation is a build up of acid. It’s the acid that gradually damages our joints if we don’t get rid of the inflammation. She also knew that when you consume vinegar, it becomes alkaline in the body. So her theory was that the alkaline vinegar would neutralise the acidic inflammation. Lots of people with all kinds of inflammatory arthritis have found relief this way, thanks to her book on the topic.

Instructions for how to take apple cider vinegar:

Use live, raw vinegar, with the cultures in it. If you see little strings or sediment, that’s a good sign. Any kind of vinegar is fine, though apple cider vinegar apparently offers many other health benefits. I personally make my own vinegar by fermenting kombucha for longer and prefer to drink that. It’s full of probiotic cultures and kombucha is also reputed to have a wonderful detox effect.

Put 1-2 tablespoons of vinegar in a glass and top up with water. Never drink vinegar straight or you’ll burn your insides. Drink, and follow immediately with plain water to rinse out your mouth. Leaving vinegar on your teeth 2-4 times a day can erode the enamel on your teeth, so always wash it off. You can also drink it through a straw, taking care not to get vinegar on your teeth. This a bit intense at the back of your throat.

When you first start taking vinegar, it will feel very sour, so put less vinegar in your glass, and gradually work up to larger amounts.  My kombucha vinegar is much milder than the apple cider vinegar from the shop so I put more in the glass.  I aim to have it as sour as I can stand.

Margaret Hills suggests adding honey, and using warm water so the honey will dissolve, to make it easier and pleasanter to drink. I prefer to use stevia drops instead, as they have no calories.

I’ve found I do best if I have 4 glasses of vinegar-water a day. I have a glass on rising, another mid-morning, one mid-afternoon, and a final glass before or after dinner. These days I put it all in a one litre drink bottle along with 5 drops of stevia and a teaspoon of Vitamin C. The Vitamin C helps me fight off colds – it’s not for the AS. But I’ve noticed that having it in my drink bottle is more effective than taking a single dose of Vitamin C morning or night. I have noticed with the vinegar water that if I drink the entire litre, say, in the morning, it works just as effectively as if I spread it evenly over the day. But I find this makes me feel a little nauseous on an empty stomach so it’s best for me to sip it slowly after food.

My favourite way to drink it is with this recipe I copied from a Braggs drink:

In a one-litre bottle place 4 tbsp apple cider vinegar, ginger infusion (I grate ginger and steep it in boiling water then strain – I keep a bottle of this in the fridge ready to go), 40 drops of stevia, and then top it up with water. This is delicious like a soft drink – but a bit intense for every day. I use only 5 drops of stevia most days.

How long does it take to work and who will it help?

It took about 5 days before I started to feel better. After that, for the next 10 days, every day was a little better. Apparently it takes a whole month to get the maximum benefit of this remedy.

This remedy helps all kinds of inflammatory arthritis, including rheumatoid arthritis and reactive arthritis. It should remove inflammation, so pain associated with inflammation should be reduced or disappear. It won’t help pain that is caused by damage to your joints that has already occurred though.

Natural Treatment with Diet

Before I discovered the vinegar treatment, I managed my AS by eating a starch-free, lactose-free diet.  Since starting vinegar, I’ve found I can eat starch and lactose, and my symptoms are better than they were when I followed the diet, but some readers of my blog have reported that they do better by following both the diet and the vinegar treatment, or they prefer the diet than the vinegar.

A starch-free diet is a restrictive, difficult regimen to follow, but the pain and degenerative problems caused by AS can be a very good motivator if the diet works.  Unfortunately starch-free diets are pretty-much unheard of in our society, so it can be challenging to work out exactly what you can eat and what you can’t. I found that eating only the tiniest amount of starch (a single breadcrumb, or a pea) was enough to set off my symptoms dramatically, so it took some time of following a very strict diet, and gradually adding in one food at a time, to discover what foods I could eat and what I couldn’t.

Everyone’s body responds differently to the diet, so if you are trying to make this work and struggling with it, I would suggest starting with a very limited diet of foods known to be starch free, and after the pain has reduced, add in one new food at a time, observing your pain levels the day after adding in the new food. Some people tolerate lactose fine, others need to eliminate that from their diet as well. I will list here what I ate on this diet as I found this sort of info on others’ blogs incredibly helpful in designing my diet.

I could eat:

Rice: glutinous rice – both black and white. Glutinous rice has a different-shaped starch molecule than regular starch, and in me it didn’t trigger my symptoms.

Vegetables: broccoli, cabbage, cauliflower, leek, brown onion, lettuce, rocket, celery, spinach, silverbeet, red and yellow capsicum, carrot, pumpkin, fennel, zucchini, avocado.

Fruits: tomatoes, berries, papaya, grapes, apples, pears, pineapple, melons, passionfruit, persimmon, mango, coconut, citrus fruits (juiced and well peeled are fine but avoid the white pith).

Protein:
All unprocessed meat
Seafood (unprocessed only)
Eggs
Blanched almonds
Pine nuts
Sesame seeds

Dairy:
Butter
Dry curd cottage cheese
Milk, cream and yoghurt to which I had added 10 drops of Lacteeze per litre, and left to sit in the fridge for 2 days. Lacteeze is a product consisting of lactase enzymes, which over the course of two days, consume the lactose in the milk and convert it to glucose. The resulting milk is pleasantly sweeter as a result. Be sure to purchase Lacteeze drops, not a tablet or powdered form, which may contain starch.

Condiments:
Sea salt
Mustard
All herbs
Garlic infused oil (remove garlic before serving)
Spice infused oil (remove spices before serving)
Fish sauce,
soy sauce,
tamari
Vinegar
Honey (a little sugar is ok)

Fats: olive oil, coconut oil, butter, lard, animal fat.

I couldn’t eat:

Grains (wheat, non-glutinous (normal) rice, spelt, corn, etc)

Starchy vegetables & fruit:
Peas
beans
potato
sweet potato
beetroot
banana

Processed meat such as sausages or salami unless I could guarantee it was made without starchy ingredients

Nuts or seeds other than blanched almonds

Dairy products with lactose:
Milk
Yoghurt
Soft cheeses
White cheese 

Thickened sauces such as oyster sauce or ketjap manis, or processed curry pastes

Condiments:
Ginger
garlic
pepper
spices.

A typical day of meals:

On rising: 1 tsp cod liver oil in dissolved in freshly squeezed orange juice. (Fish oil apparently helps arthritis.)

Breakfast: Lactose free yoghurt, milk and cream (made the same way as yoghurt), muesli made from finely chopped activated blanched almonds, dried coconut, black sesame seeds, and dark coloured fruit such as berries, peaches, apricots, papaya.

Mid morning: Vegetable juice made with kale and beet leaves from my garden, beetroot and apple, or a cup of warm bone broth (stock) with fish sauce and vinegar added.

Lunch: big plate of vegies or salad, with some eggs, meat or fish, topped with at least a tablespoon of butter.  Sometimes soup. Sometimes black glutinous rice with eggs and greens.

Mid afternoon: Activated blanched almonds and dried fruit.  (If I didn’t eat almonds twice a day I crave carbohydrates.  And I can’t get through the afternoon without a snack.)

Dinner: Another big plate of vegies, often a roast or a stew, with meat or fish, and plenty of butter.

Dessert: I often craved something in the evenings, and when the cravings were high, I’d eat either a bowl of fruit with lactose-free cream, or else I have a homemade icypole made with egg yolk, lactose-free cream or dry curd cottage cheese, strawberries and honey.

Drinks: through the day I drank two glasses of lactose-free milk, 1-2 glasses rejuvelac, 2 or more glasses beetroot kvass, and sometimes I had a herbal tea such as roibos or the korean corn tea.

About glutinous rice

I read on an AS blog that glutinous rice is made up of a different form of starchy molecule – amylopectin, while most starchy products are made up of amylose.  Apparently klebsiella bacteria can consume amylose but not amylopectin!  Glutinous rice is made up of amylopectin, not amylose, so theoretically it should be safe for those of us with AS to eat.  My first attempts at this failed – I bought a black rice which I thought was glutinous rice, but now I think was actually not glutinous.  At first it was fine but after a while my klebsiella evolved and I began to get symptoms from it. I then sourced a proper glutinous rice and had no symptoms from eating that over a longer term.

Diet issues

While once I had adjusted to the diet, I was okay on it for a year, but after that I think some stores of nutrition became depleted, because I found it increasingly difficult to follow, especially living without wheat.  I  noticed that when I didn’t eat wheat for a long time, I began to get desperate cravings.  It felt like having low blood sugar.  If I ignored it, my symptoms become progressively worse, so that I became extremely ill.  If I broke my diet and eat wheat, I felt better, so much better, and all my cravings would go away again, for about ten days. When I tried to quit dairy I found the same experience. Some people seem to do fine on this diet and don’t report the problems I felt, and I never did get to the bottom of how to handle it.

About Ankylosing Spondylitis And Its Causes

AS is a form of inflammatory arthritis, where your joints become inflamed. When you have the fluid of inflammation sitting around your joints for long enough, eventually that liquid erodes the cartilage that protects your joints.  Once the cartilage is eroded, the damage is irreversible, and also very painful.  So it’s important to treat the AS in some way – leaving it untreated will eventually lead to permanent joint damage and pain.

When Google searches for natural treatment for AS didn’t yield up anything for me, my family urged me to do some proper medical research.  My sister showed me how to search online medical journals, to see what the very latest research was for AS.  I also noticed that AS was often grouped with other auto-immune diseases such as MS, and broadened my search to see what was helping auto-immune diseases in general.  I started making a habit of trawling the medical journals at night once my son was in bed. If you’d like to read more about how to DIY your own medical research, I’ve written about that here.

It took me two months, but eventually I found IT – the answer. Here’s the real deal on AS.  There is a rheumatologist in the UK, a Dr Alan Ebringer, who has been researching AS for 35 years, and has published nearly sixty research papers.  I have read several of his papers and can see how he slowly built up a picture that explained AS and how to treat it through diet.

Ankylosing Spondylitis (AS) is a form of reactive arthritis that follows an infection by the bacteria klebsiella pnuemonae.  The disease only occurs in people who have the HLA-B27 gene (which I do).  Although 5% of AS patients do not have the gene – Ebringer thinks that the disease in these patients is actually a different entity.  Klebsiella pnuemonae is remarkably similar in molecular make up to the HLA-B27 gene.  Hence, when the body makes antibodies to klebsiella, the antibodies also

Klebsiella is in the digestive tracts of 40% of people, and tends to be an opportunistic bacteria that creates disease in people whose immunity is lowered.  I now believe that I came down with a klebsiella infection in May 2008, at a time when my immune system was in very low state, just before I changed my diet to traditional foods.  I had a very sudden onset of high fever, chills and terrible cough, which is consistent with the symptoms of community-caught klebsiella infection.   I was so ill that I still clearly remember the day that I came down with it.  It took me three months to recover, and despite visiting the doctor and being suspected as having whooping cough, the tests came back negative for this.  I now know that commercial labs don’t have a test for klebsiella, which explains why I wasn’t diagnosed at the time.  Several months later I started experiencing symptoms of AS.

If klebsiella could be eradicated from my digestive tract long term, it’s likely that my immune system would register the invader as gone, and would stop attacking the B27 genes.  However, killing them with antibiotics doesn’t help, because the bacteria is so prevalent in our community that they tend to return.  Sulphasalazine is a drug with (often) unpleasant side effects that is commonly used to treat AS.  It kills klebsiella, which is now thought to be the reason for its (somewhat) effectiveness.  However, when sulphasalazine is discontinued, symptoms tend to return within some weeks or months, likely because the klebsiella have recolonised the digestive tract.  Klebsiella feeds on starch, so removing their food source in my digestive  tract can starve/subdue them, resulting in a lowered immune reaction.  When we eat starch, some of it tends to remain undigested in the digestive tract, creating in an abundant food source for the klebsiella.  Clinical experience has shown that low starch diets help all patients with AS.  Lactose is a secondary food source for klebsiella so elimination of lactose is also essential for some people.

In clinical practise, all 600 of his patients have shown high levels of klebsiella, and those who have managed to adhere to a low starch diet (reduced intake of flour and potatoes) have shown a significant improvement in symptoms, although damage done by the disease cannot be undone.

Crohn’s disease is also associated with AS.  Patients with Crohn’s also have antibodies to the klebsiella bacterium.  It is thought that Crohn’s disease and symptoms of Irritable Bowel Syndrome (IBS) are part of the AS spectrum.  Low starch diets also help people with Crohn’s disease.

One of Ebringer’s patients, Carol Sinclair, who has both AS and IBS, has written a book, The IBS Low Starch Diet, which reveals how to manage this diet.  She suggests eradicating all grains, cereals, lentils and pulses from the diet.  If symptoms remain or recur, then eliminate rice and potato products (including sweet potato).  Should symptoms remain or recur, then eliminate numerous other foods which include low levels of starch, including cooked vegetables and spices.  There is a simple test to determine the starch level of a food.  Buy iodine from a chemist, and place a drop on the food.  If it contains starch, the colour of the iodine will change.  It darkens from orange to shades ranging from inky blue to black.  Some fruits and vegetables that are picked unripe (such as many found in supermarkets) contain high levels of starch, but have no starch when picked at full ripeness.  Some vegetables develop starch in cooking but are starch-free in their raw state (actually the starch is present in the raw state but shielded by an “envelope” that goes through the digestive tract undamaged; cooking destroys the envelope and releases the starch).  The iodine test assists in determining which foods are safe to eat.

The goal of the diet is to find out which and how much starch needs to be eliminated to maintain a pain-free, symptom-free life.  Not everyone needs to eliminate all starch.  One AS sufferer reports that after a strict no starch diet for 5 months, eating only meat, fish, vegetables, salad and fruit, he has been able to reintroduce bread, but cannot eat pasta, potatoes or rice.  Carol herself has found that over time she has needed to eliminate more foods in order to keep her symptoms under control.

Following a low starch diet generally results in remission from AS and symptoms, but is not a “cure” for the disease, since once we have antibodies to klebsiella, they are always able to attack the B27 gene.  It’s a matter of encouraging the immune system to register that there is no threat from klebsiella at this time, to minimise antibody activity.

When I started eating a no-starch, low-lactose diet, and the difference was remarkable.  All sorts of weird pains and symptoms disappeared instantly (e.g. I’d twisted my ankle some time before, and had pain in my foot for months – this resolved itself immediately when I changed my diet).  At first the changes were very difficult, and I found it hard to feel satisfied after a meal.  Now I accept that without grains and starches to fill me up, I don’t get that really “full” feeling after a meal, but my food DOES give me the energy I need to carry me through to the next meal.

A bit more about AS

Thanks to a suggestion by someone who commented on my blog, I bought and read Micah Cranman’s book / DVD package.  I would recommend this resource to anyone with AS, though I wouldn’t go as far as to say that my AS is in remission as a result of his book.  My AS is not in remission at all, it is simply managed through drinking vinegar.  The diet is the same as the one I’ve already described here on my blog (for free) – starch free.  Micah does go into a bit more detail about a few ingredients which I was previously unable to find out whether they were starchy or not.  I found that helpful.

He also advises that a first step towards improving your AS is to take fish oil – he recommends krill oil.  I went out and bought some and started taking it, but had no improvement at all as a result.  But then I realised that I already take cod liver oil every morning, and probably this fulfills the same function.  So I’ve probably already got the benefit that can be had from fish oils.  But a note to those of you out there with AS, experiment with fish oils.

I’d love to hear from you.

Since I started telling people about AS, I’ve discovered almost everyone seems to know someone who suffers from the weird problems of joint pain, digestive troubles and skin troubles.  Or they know someone who has already been diagnosed with AS.  Since rheumatologists here in Australia don’t seem to know about Ebringer’s research, feel free to spread the word and let people with AS know about this article.  Ebringer has started a forum for people to share their progress and diet tips, and it’s a great place to start.  Carol Sinclair’s book is another good starting point.

If you have AS or know someone who does, please leave a comment to share your story. I sometimes get people asking me to give guidance or help them with their condition. Sorry, but I’m not a doctor and can’t do that. The purpose of my blog is to give you information so that you can use it to help yourself.

231 thoughts on “Natural treatment for ankylosing spondylitis and inflammatory arthritis

  1. Srashti

    Can you tell me, vinegar is good for every AS patient, simple vinegar is ok or as you said apple flavor is only helpful to cure pain in AS. there is too much pain in feet and i am taking NSAIDS, Medrol also but could not get relief.

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    1. Asphyxia Post author

      From what I understand, vinegar will reduce inflammation in all AS patients, and people with other kinds of inflammatory arthritis such as rheumatoid arthritis. But I’m not a doctor and so I can’t prescribe specific treatments. Note that vinegar will only reduce inflammation, it will not undo joint damage that has already been done, that could be causing pain.

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      1. Subham Dutta

        Hi mam I also have AS . I have taken lots of drugs by injections and by medicines. that give me some relief of 3-4 months. but i am feeling that pain again. i search a lot in the internet to get rescue from it, i found your blog and read the importance of apple cider vinegar. but i know that the mixture of apple cider vinegar and backing soda is useful for AS. but here i read only about apple cider vinegar. please clear me that what is the correct way to take apple cider vinegar daily.. Thank u mam. hope u will reply me first. 🙂 thanks a lot

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  2. nandini

    Do u know homeopathy and ayurveda have a cure n one can always use flex seed too

    DI u have any groups made in nz or Australia as such to help ppl.

    I want to start this campaign to help ppl so would love to join on this front need a mentor.

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    1. Asphyxia Post author

      I didn’t know homeopathy and flax seed can help. Perhaps you can post details here so others can benefit from them? The only group I know of is the kickas forum I mentioned in this post. If you start a campaign, feel free to post about it here so that people who come here can find it.

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  3. acorpron

    Hi – I came across your blog somehow – I have AS and have been on the NSD (+ no dairy/caffeine/refined sugar) since June 2015. It’s been difficult, but I’ve stuck to it, though I’ve struggled with adding foods back (mainly veggies: carrots, cauliflower, etc) – each time I try a new food, I run the risk of a flare. I just had the LEAP MRT blood test done in the hopes of pinpointing foods that i’m sensitive to, but I’m really intrigued by your ACV (or kombucha vinegar) remedy! It would be so great to be able to enjoy some of my favorite foods again. How long did you drink the kombucha vinegar for before you started adding starches back in? And how much starch/dairy do you eat on a regular basis now? Thanks in advance for your input!

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  4. Asphyxia Post author

    I know what you mean about the risk of a flare when adding back foods It takes me about 5-6 days to recover from a flare, and it also took 5-6 days for the vinegar to start working. As it happened, I was actually eating starches at the time I started the vinegar treatment, as I was staying with someone and it was too hard to stick to my usual diet. It took 5-6 days for the pain to go. Now I can eat normal amounts of starch but I prefer a diet without too much starch anyway as my body has adjusted to this and I believe it’s better for health to focus more on protein, good fat and veggies.

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  5. madhurzya guha Roy

    Hi asphyxia….. U do inspire me a lot n thnx for that…. It was very difficult to kill my dreams in the age of 18 when i first came to know about my AS situation…. But u show me a way…thnx…Now i m taking the doctor’s prescribed medicines n planning to start the vinegar treatment…. Now i m staying in another city from my home for studies where eliminate the starchy foods is impossible…. I mostly feel pain in my hipjoint, now i feel pain in my sternum also for last few weeks…doctors said it is from my spondyloarthopathical disease… Do u heard about this sternum pain???? N what about taking kod liver oil????? How much pills u take in a day???… Thnx.

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    1. Asphyxia Post author

      I haven’t felt sternum pain myself. But I do have lots of weird pains in weird spots when I don’t take enough vinegar. I do take cod liver oil – I take 2,000 IU per day, which is quite a high dose, but I think that’s important for people who have a lot of inflammation/health issues. I’m not a doctor though so only you can work out the best course of treatment for yourself. I do that by experimenting.. maybe you do the same?

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  6. Jennifer

    Hello, I have been researching different essential oils and other ideas to help my husband with his AS when I stumbled upon this glorious blog! As you said we can pin point when the disease was triggered in him late January and boy did it kick in! He was in several pain and could barely lift his legs. After taking meds for a few months we decided the side effects were not worth it and quit taking them. We did a whole 30 while also being starch free and he began taking curamen. What a difference! I do have to say that eating starch, sugar and dairy free all the time has been extremely difficult and have had flare ups when he has a little starch or sugar. I am so thrilled to read about the apple cider vinegar and will be trying it out tomorrow. Thank you so much for the info. God bless!

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  7. Kathryne

    Hi everyone,
    I have had AS for about25 years now. I have been in excruciating pain and gone through several types of tx. I do find apple cider vinegar helps, but do stay away from foods that affect me. To answer the question about sternum pain…oh yes! I have had terrible costochondritis, sternum pain even to a point that I thought I was having a heart attack. One day, it did though, so I encourage others that if you have a doubt it may be the heart, seek help immediately!
    I habe done antibiotics and also a vitamin supplementation program and feel it is an absolute must for those with severe AS.
    Take care…

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  8. Debbi Heaton

    Hi. I have just been diagnosed with AS at 51 years of age despite 100’s of doctors visits complaining of my unbearable aches and pains, and being subjected to ridicule and disbelief with responses such as “go home and take a Panadol”, “you’re just looking for attention”, “go join a sewing group”. Finally a new doctor listened to me without thinking I had mental issues and subsequently ordered the right tests. I’ve been experiencing some type of pain for the past ten years but the past few months has become unbearable. Excruciating pain in my sternum, under my left breast, my left rib cage, left collar bone and shoulder, left elbow, left hip and thigh. I’m lucky to get two hours sleep at night, and get out of bed feeling like I’ve been ran over by a truck. I’m having trouble with my eyes (black floaties) and my short term memory is shocking. Food, well I prefer not to eat as so much makes me violently ill. To date I’ve gone 4 days just on water. The last week I keep getting a sensation like I have coconut stuck in my throat which results in coughing fits. My doctor prescribed Endone and Lyrica, neither of which did any good, and tonight prescribed Tarine and Brufen. The past few days I’ve read everything I can find via the web, and in all honesty I am so scared. I would really appreciate any help and advice anyone can give me.
    Thanks Deb

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    1. Erin

      Although it may not help your symptoms, I’d suggest by starting with making a list of all the doctors who slammed their door in your face and letting them know that they suck at their job: you now have a diagnosis. I’m 41 and my AS has decided to rear its ugly head. This time it’s not backing off, so like you, I’m here looking for some alternatives. I was on a low-carb-high-protein diet a couple of years ago, and I felt really fantastic on it. It was for weight loss, but I had no aches or pains. It’s unfortunate, because I love me some carbs.

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  9. Randy

    I have just found this page and wanted to say thank you. I have been struggling with AS for 15 years and finding this post/site today has inspired me to keep up my battle, learn as much as I can, and share my story. I’m starting the starch free diet today and the apple cider vinegar treatment and will report back with results. Stay healthy, stay happy. Cheers.

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  10. belistrophic

    Hi thanks for your blog post. My partner has AS, we are also in Australia. I’ll buy apple cider vinegar from the health food shop and try your recipe of 4 x per day, is this what u recommend? and hopefully it helps his pain as it has done for you.
    🙂 bel

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  11. PB

    Hi Asphyxia,

    Came across your blog while searching for natural remedies for AS. Your blog is very encouraging for someone like me who is suffering from AS since 2 years. In the blog I found this paragraph incomplete..

    “Klebsiella pnuemonae is remarkably similar in molecular make up to the HLA-B27 gene. Hence, when the body makes antibodies to klebsiella, the antibodies also”

    I’m really interested to know how what happens when the body makes antibodies to klebsiella. Can you please update the blog?

    Thanks,
    PB.

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  12. Diego

    Hi .. thanks for the Blogs… I have never read anything in so much detail. I have started doing a research on AS to cure my situation. This had started 2-3 years ago, and the pain has become worse, especially early morning. Taking Nsaids continously is a short term solution, but scary long term. I will definetly try the apple cider vinegar formula and cut down on lactose and starch. Will defenitley post with results… thanks.. God bless

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  13. ken winston caine

    PB, I can’t tell you exactly what words Asphyxia accidentally dropped from the sentence,
    “Klebsiella pnuemonae is remarkably similar in molecular make up to the HLA-B27 gene. Hence, when the body makes antibodies to klebsiella, the antibodies also…”

    However, I can complete the sentence for you in my own words:
    “…attack the HLA-B27 gene receptors, wreaking havoc, causing inflammation.”

    Asphyxia can correct that, if I’ve misunderstood.

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  14. Ksenija Pučak

    Hello, I am writing you from Croatia and first please excuse my poor english :). I have found this page and wanted to say thank you very much for sharing valuable information. I have been on No starch diet for 6 months because of AS, but I have been still struggling with morning stiffness and pain. I have read everything about Klebsiella and tried some ayurvedic medicine substitution for Nsaids (and it worked fine with some stiffness and pain) but when I found your blog and apple cider vinegar as your “life saver”, I tied this recipe of yours (it is fifth day) now and HAVE NO PAIN OR STIFFNESS AT ALL ! It is a miracle!!! Thank you very, very much, it means a world to me, I am a photographer and I was very scared that I will be no longer able to work!. Thank you, bless you! 🙂

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  15. arun kumar

    hi sir I’m a patient of AS pl suggest diet & ex for AS my spine &neck is very stif not turn neck right or left

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  16. mohammed israwi

    Hi Asphyxia. I have AS and my father has it too. I would love to thank you for this great article! Thank you for sharing your experience and all these valuable information. Starting from tomorrow morning I will start taking apple vinagr and go in a free startch diet.
    Thanks a lot

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    1. Lori

      TY So much for this valuable thread Asphyxia. I am undiagnosed but suffer from many of the symptoms mentioned, I have been taking the apple cider vinegar as suggested with ginger infusion and have noticed a remarkable difference in my pain level. 4x daily!!!! I feel extremely thankful and wanted to take the time to post something (I never have done this before) because it helped me and I hope it helps others too. I know all of our bodies are different but we need to explore and try alternative nature made remedies and see what can help. I also take a teaspoon of chopped fresh garlic in yogurt in the morning and take Curcumin (turmeric and ginger) in a pill concentration that makes the turmeric as active as possible as it is hard to get it ( the right amount of active ingredient that we need to reduce inflammation) from using the turmeric raw by itself. Tart Cherry juice is also part of my regimen. The diet suggested here is SO hard…….Don’t give up and eat a bag of M&M’s and ice cream like me, you will be remorseful and in pain! God Bless everyone here, and may you find peace and some freedom from pain. ~ Lori

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      Reply
  17. cindy

    Thank you. I will try this remedy. I do have Klebsiella but not sure about the HLA gene. I looked on my genetic testing but did not see this mentioned? Could it be called something else? Thanks so much.

    Like

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  18. Oranit Berger

    Thank you so much for this blog post. Inspiring. A few questions:
    1. Does it matter if I start with the Apple cider vinegar or do you recommend the kombucha vinegar?
    2. How many times a day should I drink the vinegar?
    3. I am B27 Negative. Do you think this will affect my chances of this treatment working?
    Thanks you very much and sorry for writing so many questions!

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  19. John Ste

    Hello, Thank you for this glorious blog! I’m trying the Vinegar today , as well as the starch free diet . The one spice I have been trying lately is Tumeric. I’m using the organic powder and sometimes the organic pieces in smoothies. You mention stay away from process curries but have you experimented with the raw Tumeric or Curcumin. Thanks in advance. Keep up the good work John from Canada

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    Reply
  20. Gerardo gutierrez

    I been havin AS for more than five yrs n it went worse when i was diagnosed with cdiff Hla gene i have n im fighting this its very pain full in my back n hips n chest i will try the apple cider vinegar n if any of u find other alternatives besides meds or have a cure with natural meds plaease email me or reply i would greatly appreciate it. Gera86gutierrez@yahoo.com

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  21. Mariam

    Hi , I have had AS for the past 10 years.The first 5 years I didn’t find out what was wrong with me. The doctors said I was ok just a vitamin d deficiency. I thought I was crazy the pain increased it became difficult to even walk. Finally I got diagnosed and started yoga and medications. I have been having
    Salazopyrine and proven for the past 5 years. Have tried to stop medication but the pain is to much. Where do I find original vinegar?

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    Reply
  22. binod dhakal

    Namaste!
    i do have HLAB27 +ve. I have back pain since from 2 yrs. i used some medicine like nsaid, and salfasalzen but it does not help. its difficult to wake up in morning and pain whole day. i saw yr blog today,so i am planning to use vinegar. I hope it does help.

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  23. Manvendra

    I have AS without hla b27 gene. Could you please help me with some article or research done for AS without hla b27. I am not able to find anything online.

    Like

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  24. shambhu

    I am shambhu from nepal of 29 and studied your blog . actually i am also having the problem of pain at my back between back and pelvis and i have tested hlab27 it is positive what should i do can you please suggest me

    Like

    Reply
    1. Shan

      HI shambhu i am shan. I was also diagonised with AS and had very bad SI joints I am taking ACV thrice a day, Now foods ultra fish oil( 3 caps twice a day ) and Doctor best curcumin( i cap 3 times a day ) and vitamin D + calcium( 1000IV + 1200 mg per day ). I dont know what works and what not but all these have eased may pain a lot so you can give it a try I think it will definetly help.

      Like

      Reply
      1. Asphyxia Post author

        Thanks for the tip, Shan 🙂 I didn’t have any luck with cur cumin but am trying Vitamin D and Calcium now. Hopefully they will help.

        Like

  25. liz grant

    Thanks so much for all of your time and dedication to sharing what you’ve found about this. Someone told me they thought I had AS seven years ago and mentioned the starch-free diet, and it was such a scary thought (going starch-free;) that I ignored him entirely. I recently started researching because of my increasing symptoms and then remembered my Grandfather’s spine was horribly disfigured from “bamboo spine”.

    I copied these suggestions from a YouTuber at the bottom of a video on AS. Here’s what he wrote (Pardon me for not being able to attribute credits to the author, I can’t find him again)

    1 tablespoon of Apple Cider Vinegar (diluted in about 8oz of water) 4X per day
    >This takes about 5 days of treatment to see any effects, and a month to see full effects. Keep at it, its amazing and worth the sour taste!

    Additional Treatment options to further eliminate symptoms if slight pain is still present:
    -Fish Oil (Krill or Cod Liver Oil)
    -Fermented foods (Kimchi/saurkraut)
    -2 Drops Oregano Oil

    If pain is still present:
    -No starch diet, except for sticky white rice. (This is because sticky white rice lacks 1 of the 2 starch complexes found in all other starchy foods. Luckily klebsiella is only able to feed off of the absent starch complex.)

    Treatments I cannot attest to yet (just started):
    -Selenium
    -B12/B-Stress Complex
    -50mL peepal tree b

    Blessings to all!
    Liz

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    Reply
  26. Mzouk

    Thank you for this helpful read,
    I wanted to ask some questions – I am hla27 negative however i have all the symptoms and am unable to confirm will bloodtests or mri yet. It seems i have a seroneagtive form of Spondylitis and it just started around 3 months ago. My bloodwork is not showing any elevation in ESR or CRP. And mri of my scarojoints show no damage yet.
    My questions are :
    1- would Apple vinegar benefit me giving that im hla 27 neg
    2- does this remedy cause a decrease in inflammation therefore preventing / slowing down joint damage?
    Really appreciate your help
    Thanks

    Like

    Reply
    1. Asphyxia Post author

      Dr Erbringer believes that if you are HLA-B27 negative, then you have a different entity than AS. If it’s an inflammatory problem, the vinegar should still help by decreasing inflammation and slowing joint damage. The starch free diet probably won’t help.

      Like

      Reply
      1. Niudharta Koh

        Dear Asphyxia, i am so glad to find your blog.
        I just bought one bottle of organic apple cider vinegar today.
        I want to get my husband to drink with water everyday. He has joint inflammation for years.
        He has been on injection for few years to relieve his joint pain.

        Like

  27. Nirajan paudyal

    I m nirajan paudyal from nepal suffering from as i want to take naturel remedy. If any Aayurbedik medicine is help full plz help me.

    Like

    Reply
    1. Asphyxia Post author

      I’m sorry, I’m not a doctor and cannot give personal advice. Everything I know about AS I’ve written here on this blog, so you can use this information to help yourself.

      Like

      Reply
  28. Marthina

    Thank you for the information.
    My daughter was diagnosed with AS (HLAB27 positive) at age 17. She is a competitive swimmer and we are just thankful that we got to the right doctor after two years of struggling with nagging pains. She has been on meds for 18 months and it has helped, but she still has flare-ups every now and again. Diet does make and enormous difference and she has been eating starch and sugar free. She is still swimming, which also helps with mobility. We have found that drinking Alkaline powder also helps. She will definitely be trying the vinegar. Will report back soon.

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  29. Gail Penniman

    I had active AS for 9 years, extremely painful and debilitating. I had a stool culture and sensitivity and found a Klebsiella overgrowth in my gut. A rheumatologist in Riverside CA, Dr. Franco, put my on an anti-biotic regimen and within 2 weeks I was pain-free. Stayed on the regimen for 4 years and had 17 years of remission. Recently, the symptoms have come back and I intend to take the proper steps to have my gut tested for Klebsiella again and get on whatever medication is indicated. I am sure diet is helpful, but frankly, if there is an occult infection in the body, the immune system of a person with HLAB27 will have a reaction. Getting rid of the infection, instead of co-existing with it, is the best approach. I recommend the book, “Arthritis Breakthrough” that describes the pioneering work of Dr. Thomas McPherson Brown and his publication called “The Road Back”. The 17 years of good health I enjoyed far out-weighed the 9 years of useless, traditional immune-suppressant drugs they tried on me before I found Dr. Franco.

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    1. acorpron

      Hi Gail – that is really interesting. Can you tell me what antibiotics they had you on? I’ve been pain free on the no starch diet but still struggle with some thoracic back stiffness/pain and will flare if I eat something I’m not supposed to. Would be very interested to know what you did, and then pair it with eating lots of fermented foods to repopulate the gut with good bacteria. Thank you!

      Like

      Reply
      1. shan ahuja

        I was also diagonised with AS 6 months ago and believe me my SI joints was terrible but i couldn’t even walk. I was on NSAIDs for few weeks when i realized its not curing anything so i have switched to below treatment and it really helped me a lot and i have 95% reduced pain may be you can also give it a try.

        i) i try to avoid starchy food if possible but don’t have any strict rule
        ii) I take a glass pomegranate juice every day this works as good antioxidant
        iii) Now food ultra fish oil( 3 caps twice a day, 1 cap has 500 mg epa and 250 mg dha )
        iv) Curcumin ( 500 mg 3 times a day )
        v) ACV 3 tea spoons ( i teaspoon with hot water 3 times a day )
        vi) Vitamin D+ calcium( 1000 IV + 1200 mg ) per day

        i don’t know what works and what not but i think this has given me relief much more than NSAID’s gave me

        Like

  30. Harry

    Hello, just wondering if you are still seeing positive results from the apple cider vinegar treatment?
    Hope you are well.

    Like

    Reply
    1. Asphyxia Post author

      Hi Harry, yes the apple cider vinegar remains a miracle for me. When I miss a dose I get sore. As long as I keep it up my AS remains very manageable. Asphyxia.

      Like

      Reply
      1. Harry

        That’s good to hear! I have tried it myself now for a month , initially for about 10 days at 8ml diluted in water 4 times a day, now for the last 2 or so weeks I’ve upped it to 20ml diluted 3 times a day. Hoping that I continue to see improvement! Thanks for sharing your experiences, because if you hadn’t, I may never have committed to it myself.

        Like

      2. Georges Arnaout

        I am wondering if you are actively monitoring your ESR Level to make sure the ACV is not making the symptoms while the disease progresses?

        Like

  31. Prem

    Hi, Asphyxia
    I’m from india .confirmed AS by doctor a week ago . I just want to know that the ways and solutions which you have specified and used are actually working ?. Are you 100% cured from AS ? If yes then please guide me i would appreciate anything that could help me .

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    1. Asphyxia Post author

      Hi Prem,
      Everything I’ve put in this blog post is current. The vinegar is working for me. I’m not ‘cured’ – but as long as I take the vinegar my arthritis doesn’t give me much trouble.
      Asphyxia

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      Reply
  32. Angelica Sanzotta

    Hi,
    Thank you so much for the support you offer in this site. I am currently being tested for AS and I am terrified. I started with pain in my right ankle (posterior tibial tendinitis) and it has progressed to my left ankle, right knee, both wrists and lower back. My back has been hurting ever since I had my daughter 3 years ago and I assumed it was due to the two failed epidural inyections during delivery. My father has lupus and is currently in remission! My sister was diagnosed with fibromyalgia 2 years ago and my aunt (dad’s sister) has AS. My aunt is on a monthly inyections of Simponi. I hadon’t blood work done today, along with 2 pelvic xrays. I am just praying because I can’t imagine getting worst whIle taking care of my little girl my husband and I also wanted to have another baby ( I am 37 years old) and now everything is very uncertain. Thank you so much for any advise or insight. I appreciate it more than you know.

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    1. Asphyxia Post author

      Hi Angelica, good luck – that all sounds scary. I can give you a little encouragement though – my AS has not become any worse while I’ve been on the vinegar protocol. It’s possible that by drinking vinegar, and maybe doing the low starch diet if needed, that you will not become any worse. Fingers crossed.

      Like

      Reply
  33. shan ahuja

    I was also diagonised with AS 6 months ago and believe me my SI joints was terrible but i couldn’t even walk. I was on NSAIDs for few weeks when i realized its not curing anything so i have switched to below treatment and it really helped me a lot and i have 95% reduced pain may be you can also give it a try.

    i) i try to avoid starchy food if possible but don’t have any strict rule
    ii) I take a glass pomegranate juice every day this works as good antioxidant
    iii) Now food ultra fish oil( 3 caps twice a day, 1 cap has 500 mg epa and 250 mg dha )
    iv) Curcumin ( 500 mg 3 times a day )
    v) ACV 3 tea spoons ( i teaspoon with hot water 3 times a day )
    vi) Vitamin D+ calcium( 1000 IV + 1200 mg ) per day

    i don’t know what works and what not but i think this has given me relief much more than NSAID’s gave me

    Like

    Reply
  34. shan ahuja

    HI Asphyxia, sad that cur-cumin didn’t work for you but as i said they all work if taken together. Only fish oil,or only cur cumin,or vitamin d or calcium was not helping for me.it just their combination had eased my pain so much i can remember my old days and i am very good now.Even fish oil to work you need around 4000mg EPA.And taking cur-cumin is good only if you take it with bioprine and olive oil and do not take with meal

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    1. Angelica Sanzotta

      Thank you do much for your post! Would you mind sharing what type of fish oil you take? Also how much calcium and vitamin D? Do you take magnesium? How do you mix the curcumin. Do you also do a low starch diet?
      I am so sorry for all the questions. I am in horrible pain and in need of help. I truly appreciate your time. God bless you!

      Like

      Reply
    2. Angelica Sanzotta

      Hi! I apologize for my earlier reply. I just realized you had already answered a bunch of those questions. I went to natural food store and purchased all the supplement. I do have one more thing to ask. Is there a particular type of curcumin that you are taking? I read about Meriva Curcumin being ideal for inflammation. The Calcium I purchased is a raw food kind and it already comes with vitamin D and magnesium. I was wondering if you take extra of either of those when they already come with your calcium? Or just the 1,000 IU of vit amin D overall. I apologize for all the questions but I am new at this and want to be sure that start this natural healing process the right away. I am determined to avoid damaging pharmaceutical drugs! I so appreciate your patience and help. God bless you all with good health!!

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      Reply
      1. shan ahuja

        Hi Angelica,thanks for reaching out. I would glad to help you out with this, remember you are not alone in this,
        I had known that i have AS last year. My Sacro joints were effected so much that i barely could walk,and i also had so much of back pain when i woke up every day, I took medical treatment for 7 months which has badly effected my liver kidney and heart so i was forced to move on to natural process.

        Initially amount of fish oil i took was very large since i was in bad pain and i came to know fish oil takes around 2 months to work properly.So starting it was not helping so i also added ACV 3 times a day and ordered cur cumin c3 complex from doctor best. Pain reduced but it still was not that sufficient that i could walk so i also tried adding calcium and vitamin d to my supplement diet.I took 1000 IU vitamin d caps which had 1200mg calcium int it( i used natures bounty calcium + vitamin D tabs ). Below was my initial dosage which helped me subside my pain in almost a month day by day i was starting to feel better
        i) ACV three times a day
        ii) cur cumin 2000 mg i took care so that i am not taking it with meal since during that it just by passes the system. Meriva has good bio availability but i have never tried i just used doctor best c3 complex with bioprine, i used to open that capsule and put some olive oil in it to increase it bio availability further
        iii) took nature bounty calcium + vitamin D tab 1 day and 1 in night
        iv) fish oil now food ultra omega-3 3 in morning 3 in night with meal so that it doesn’t effect my stomach i find now food cheap , other one which is very good is omegavia but you need to make sure you are taking EPA at least 3500 mg per day otherwise it it not going to help i have tried various quantity and below that it doesn’t work
        vi) i am doing some exercise for sacro joints and lower back every day i cant dare to avoid them
        ,swimming is best but hard for me to learn and do it everyday

        now my pain is reduced too much i have almost around 95% improvement i just feel pain when sometimes in weekends when i sleep too much(more than 12 hrs ) and dont move my body at all but that pain is not that much that i cant walk.

        I had control over my diet until had pain i avoided starch but once my pain reduced now i am eating everything except chocolates and cold drink.And i have not tried magnesium since i never felt anything bad after this.

        now i have reduced curcumin to 1500mg since 2000 mg in long run can effect your stomach rest i am taking as described above

        Remember this will take some time before you feel difference but i am sure you will start to feel the difference after one month.in starting first month sometimes i had to take naproxen but after one month its been 6 months i have never took naproxen at all and traveled a lot too.

        Please feel free to reach me at shan123sz345@gmail.com for any question i will be more than happy to helpyou

        Like

      2. shan ahuja

        one more thing i would like to add brand in supplements does matter and every brand i choose was result of long hours of research

        Like

  35. Anup Deshpande

    Hi Shan,

    Since your comment is the latest one and you have provided your email id, i am sending you my details about AS, it started in last May month, would like to talk about this more.

    thanks.

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    Reply
  36. Pingback: Connection made – AS Journal

  37. Sherry Treadaway

    This was sent to me by a friend. I suffer from AS and have since 1995 for 21 years I am 60. It’s a hard disease. I hurt so much that gone days I just want to give up! I work at our school here and have for 31 years, I also have my own shop that I work at, go to Matket and strive to keep it stocked, decorated and continually moving and rearranging product. Is it hard, YES! There are times I want to give up but I have 6 beautiful grandkids and I live to LOVE them and watch them grow. Thank you for your information. Blessings Sherry Treadaway Monahans, Texas

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  38. Clever Clogs

    Have recently been diagnosed with AS and am going to try the Apple Cider Vinegar and No starch food as mentioned here. Some part of my spine has fused and I am on Nsaids right now. What I wonder is that if its the Klebsiella that’s causing this disease why is there no Anti Biotic to kill this parasitic bacteria. What we are doing by above methods is managing the disease and not curing the same.

    I am sad that line of treatment taken by doctors is Nsaids and later on Biologics. Biologics are immune suppressants which will short the immune system and not lead to any inflammation.
    No doctors here seem to be talking about the Diet and bacterial angle.

    Being vegetarian following a No starch diet also feels like a task. Practically everything we survive on is not allowed.

    This is an excellent blog and GOD bless you.

    Like

    Reply
    1. Asphyxia Post author

      There ARE antibiotics to kill klebsiella, but my understanding is that you have to take them for a really long time. Clinical trials run by Alan Erbringer showed that the klebsiella tend to return after one month. The assault on your body for taking antibiotics is pretty intense. To do this repeatedly could have damaging long term effects. There is a form of arthritis treatment that involves a low dose of antibiotics permanently, but I wouldn’t touch it myself.

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      Reply
      1. Clever Clogs

        Hello Asphyxia,

        Ok so Antibiotics is not an option right now. We need to wait for Dr Erbringer to come up with something better. Since you are managing the disease with Diet and ACV, are you taking any other form of medication along with the same or you are totally off meds at this time. My concern going off medicines is what if the disease is spreading and how would I know.

        Like

      2. Asphyxia Post author

        No I’m not taking any medication – I manage my AS entirely naturally. It was caught reasonably early so I hadn’t progressed as far as some people do – as I have minimal joint damage, my pain is low if I control the inflammation. You would know if the disease is spreading by the pain. Inflammation = pain = eventual joint damage.
        Cheers,
        Asphyxia

        Like

      3. Lynn

        Very minor results with 2 courses of Bactrim to kill the Klebsiellas-didn’t last at all ! BUT I did have much success in adding back foods after a lengthy disparasite protocol. But now 8 months later I seem to be reacting slightly to those foods unless they are in very small quantities.

        Like

  39. Tangela

    I just got diagnosed. Lots of drugs that make me sick . I’m trying the vinager and no starch foods . It’s horrible. I loved your blog . Very informative

    Like

    Reply
    1. Niudharta

      Dear all, you may want to search for “helping healing by Peter Winslow”
      He shares a lot on how he fully recovered from AS about 14 years ago.
      All the best.

      Like

      Reply
  40. Suryakant Pandey

    Mam,
    I have been diagnosed with this disease 8 yrs back and have been survived on heavy medication. One month before I got attack of AS again. This time it is multiple joint attack and I am relying highly on sulphasalazine and steroid. 4 days back I started taking Apple Cider vinegar( not home made) 4times a day and cod liver oil 1 TSP a day. Starch and lactose intake have been reduced.
    Can I continue apple cider vinegar treatment with allopathic medicine?
    I am having immense pain and swelling. Please guide me through this.
    Thanking you in anticipation.

    Like

    Reply
  41. Syed wajihuddin

    I am syed wajihuddin male 50years, suffering from ankolysing spondylitis. Every day taking pain killer for good sleep. Need guidance to get rid.

    Like

    Reply
    1. Niudarta Kh

      Dear All, perhaps you can try to use ArthroNEO spray for your joint swelling problem. I just read an article that it us very effective. It is made in the US, Georgia.

      Cheers, Niudharta.

      Like

      Reply
  42. Dr Zawar Hussain

    hi i am from pakistan and a veterinary doctor. i had buttock pain in fifteen years ago. i have been diagnosed AS for the last two years. i am continuously using NSAID but my pain becoming severe day by day. i have pain at my buttock as well back around my rib cage.
    today i have come to know about Apple cider vinegar. i have just ordered to get it. and please guide me if you can more.

    Like

    Reply
  43. Aishwarya

    This is by far the best article I have read. I m Hla b27 positive and my age is 22 . Last year I was diagnosed with severe reactive arthritis, my knee joint was swollen with severe pain after 3 months of trial and error treatment I was given intacept 5ml for 16 weeks. Now after almost 8 months I m experiencing similar pain with swelling in the other knee. Can you please help me with this.

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    Reply
  44. krishnamurthy

    hi, i am a HLA B27 positive. Lot of info on AS. Thanks and I will also try ACV. I have come across an article which says Green Lipped Mussel Extract (GLME) is very effective for all kinds of arthritis.it’s brand name is BIOLANE. I have not tried it. it has appeared in local newspaper. Has anyone used it ?
    Please refer following url for more details.
    http://www.nutralife.com.au/news-and-articles/article/biolane-glme-natural-arthritis-symptom-relief-from-the-sea

    Like

    Reply
  45. Ali Sanli

    Dear Asphyxia,
    I really appreciate your valuable article. It rings lots of bells for me. I have been reeling under pain caused by AS for about half a year. Recently I visited a doctor and he just prescribed a medicine. The medicine wiped off the pain on my back effectively. However last week I was strucked with a terrible insistent pain on my left shoulder. I have not seen the doc yet but in my mind I already associted the pain with AS as I have done no hard work or anything to have an injury on my shoulder. Now, day time it is fine but in the evening it becomes a nightmare. I can not lay down on the bed. It feels like someone with a hook rip my shoulder and chest apart. Did you have such a pain on your shoulder or is it a common symptom with people who has AS ? I heard low / no starch diet but did not take it seriously untill I read your article. Now I am condisering to start vinegar intakes immediately and I am seriously considering starch diet that you suggest. Unfortunately I have no trust on our health / hospital system at all. And I am not interested in destroying my body with cortison shots! Thank you very much for making a difference for me.
    Best wishes /Ali Sanli (Turkey)

    Like

    Reply
      1. Ali Sanli

        Dear Asphyxia,
        I finally got myself diagnosed with hernia on neck area and than visited a neurologist. I was right. After MR it was confirmed that there is a profound degeneration on all my neck verterbae. I wonder if these discopaty is associated with AS. It is unfortunate that the doctors from different disciplins are very much negligent to other areas so you have to bring the pieces togeater and find about the truth. Anyway, I have allready started vinigar.

        Like

  46. srehman

    Hi, Thanks a lot for sharing, this is so informative

    I have been diagnosed with AS recently and seeing a doctor these days. He is going to put me on TNF blocker very soon but i am reading the horrors of these drugs like TB activator, risk of infections and all. I am kidney donor also and i am scared what these drugs will going to do with me.

    I am already not sleeping well, having upset stomach. I am currently managing my pain with neproxen and exercises.

    My question is : Have you stopped taking medication completely by following the routine you wrote or are you still on some kind of medication along with it ?

    Thanks

    Like

    Reply
  47. Rajat Sethi

    I am also suffering from AS for last 5-6 years. Recently went to a doctor who wanted to put me on to biologics but then I did some research and found this blog which has come handy.
    I have also found a Naturopath in Delhi India who can help you fight AS. I am on her medication for last 2 months and i am able to lead a normal life now.
    After reading this blog I will try ACV also rest diet restrictions I am doing for last one month or so.
    Also would like to mention that my CRP has come down from 23 to 8 in last 2 months since i started the Naturopathy.

    Take care

    Rajat

    Like

    Reply
    1. Clever Clogs

      Hello,

      Can you post more information ( detailed if possible ) about what are you taking on advise of Naturopath. Also are you taking the allopathy meds along with the Naturopath suggested meds. You have good reduction in CRP values.

      Like

      Reply
  48. Krishnamurthy

    Hi Nice Informationon AS. I have read about GLME- Green Lipped Mussel Extract effectice for AS. it is an extract from a type of jellyfish from New zeeland. Capsules brand name is Biolene.. Have any one tried it.. I have started it recently, as i am surrefing from 10 + years.

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